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NF NEWS
May was Neurofibromatosis Awareness Month Visit The NF, Inc., NE Marketplace
 is a search engine that donates half its revenue to the charities its users designate. It's an easy way for you to help Neurofibromatosis, Inc., Northeast. Thank you! Run4NF Run4NF welcomes all willing to make a difference regardless of their athletic abilities. |
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About Us
Neurofibromatosis, Inc., NE is a non profit 501(c)(3) organization incorporated (as Neurofibromatosis, Inc. Mass Bay Area) in 1988 by a group of people who were in some way affected by the genetic disorder known as neurofibromatosis (NF). The name NF, Inc., Northeast was adopted to better describe the area we serve. NF, Inc., NE enjoys a loose affiliation with a national organization, Neurofibromatosis, Inc. and we are members of the advocacy group, The National NF Coalition. The Mission of NF, Inc., NE is to find a treatment and the cure for neurofibromatosis by promoting scientific research, creating awareness, and supporting those who are affected by NF. Since our inception we have awarded over $2 million to NF clinicians and scientists who are dedicated to treating NF patients. See list of recipients here. Using a Peer Review Grant Process we provide support to NF clinicians and researchers who may subsequently apply for larger grants from the US Army NF Research Program or the National Institutes of Health.
In partnership with the National NF Coalition, we work with congressional representatives on both a local and national level to encourage continued and increased federal funding of NF research. See Promoting NF Research .
NF, Inc., NE raises 70% of our funds at events, we receive no direct government support, nor are we affiliated with other funding entities like the United Way. We rely on corporations, foundations and individuals.
NF, Inc., NE employs two full time employees, Karen Peluso, Executive Director and Christine Messina, Communications and Development Coordinator, and a part time Executive Associate and Outreach Coordinator, Linda Yew. Margaret LaWare, the former Director of Development, remains on as a consultant to NF, Inc., NE, and the organization is fortunate to have many loyal volunteers. We are governed by a Board of Directors and we have an Honorary Board of Trustees.
Board of Directors
Dr. Paul Epstein, President
Joseph Fermano, Treasurer
Lori Ryan, Secretary
John Driscoll
David Eisenstadt
David Fredrick
Henry Kay, PhD
Dianne McHale
David Rokoff
Robert Ryan
Jessica Wolfe, PhD
The Board of Trustees
of NF Inc., NE are:
Men and women who want to make a difference,
Are leaders in the community,
Are respected by their peers,
Believe that neurofibromatosis is a terrible disease and
Believe that through advocacy, fund raising and education
A cure is imminent.
Members of the Board of Trustees will not
be fiscally responsible for the organization,
Will not be required to attend meetings,
But will provide assistance, as they are able,
attend fund raising events as time permits,
and will carry the message that
neurofibromatosis is a problem
that can be solved.
Board of Trustees
Toby Ahern Betsy Brother Joel Brother
Nancy Brown Jeffrey Brown
Cathy Cantwell Arthur Castraberti Kristen Day
Scott Day Kate Duff Megan Duff
David Eisenstadt Michael Eisenstadt
Sheila Eisenstadt Tricia Epstein Scott Epstein
Melissa Foley Sean Foley
David Fredrick Julie Gentile Peter Gentile
Kristen Harrington Bob Hopkins
David Horwitz Susan Horwitz Fabiola LeColst
Deb Keohan Andres Lessing Barbara Little
Ross MacKinnon Nancy MacKinnon
Julie Maus Nan Manganaro
Margaret McGillicuddy Dianne McHale
Lee Ann Merrill Barbara Michael
Cheryl Millman Mark Murphy
Tracy Murphy Marylou Noonan Neil O'Brien
Josephine O'Connell Bert Peluso
Kim Peluso Wendy Ritter
Wyley Scherr Diane Steidler Julie Stevens
Scott Stevens
Rosemary Sullivan Michael Shackford
James Vaughan, Jr. James Vaughan, lll
Kate Vaughan Megan Vaughan
Judi Viglione Kevin Yew Linda Yew
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