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$13,750,000 for NF through the DOD
December 16th - The Army's Neurofibromatosis Research Program has received $13,750,000 in the Fiscal Year 2010 Defense Bill. The House had included $25 million in their bill. But, when it went to Conference (like many other bills) it was cut. While the funding for fiscal year 2010 is down from our request and the House passed level,it is still an increase over last year's funding of $10 million. 
Thank you to everyone who made calls and sent emails encouraging the funding of the Army's NF Research Program.

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Steps 2 Cure NF
Date
Sun, 9/20/2009
Time
8:45 - 12:00 Noon
Description:

Inviting all NF families and friends!!

"Steps 2 Cure NF"


The NF Run/Walk will be held at Horn Pond
in Woburn, MA 
4 Mile Road Race / 2 Mile Health Walk

Sunday, September 20th
Registration and Sign-in will be from 8:45 - 9:45 AM


Click here to register online

Click here to visit the Steps 2 Cure NF fundraising page or to set up your own fundraising page.

Directions to Horn Pond in Woburn

From 128 (North or South) take exit 33A which is Route 3.  Follow rte. 3 towards Winchester.  After passing Whole Foods Plaza and Bonnell Ford take the first left onto Pond Street. (This is just before Hess Gas Station.)  Follow for approximately 1 mile to Horn Pond, which is on your left.  Park in lot at the Pond.

See our "Minute of Fame" on New England Cable News !

Contact Information:
Lori Ryan, Chairperson
LoriRyan340@msn.com
Additional Information:
Registration and Fundraising forms and letters




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Neurofibromatosis, Inc., NE
9 Bedford Street
Burlington, MA 01803
781-272-9936